Wayne Cederholm II loved to tell stories. Stories of adventure, humor, and accomplishment. Many of you spent your lives enjoying these very moments with him.
What we found through the stories on this blog and when friends expressed their condolences, is that there were many many more stories to be told.
We’d like to thank all of you that have shared thus far. If anyone has a story to share, post it here for the benefit of his grandchildren. We hope that they might get know a little bit more about the man who impacted so many people.
This is the place to share. This is where we will create a new chapter of … The Stories We Will Tell-
To all of the soldiers for Wayne, our deepest appreciation, gratitude and love for your tireless service. You have stayed true to the coarse. Not all battles are won.
Go to sleep, peaceful sleep,
May the soldier or sailor,
On the land or the deep,
Safe in sleep.
Love, good night, Must thou go,
When the day, And the night
Need thee so?
All is well. Speedeth all
To their rest
The battle rages on! Both Wayne and the sepsis have dug in – neither willing to give up.
1. A vigil (from the Latin vigilia, meaning wakefulness) is a period of purposeful sleeplessness, an occasion for devotional watching, or an observance.- what our family and I am sure all of you out there are doing.
2. a watch or a period of watchful attention maintained at night or at other times – what the ICU staff is doing
3. evening or nocturnal devotions or prayers; usually used in plural – what we are all doing.
We are keeping vigil. He is trying, but this is a true battle. Vigilance (the ability to maintain attention and alertness over a prolonged period of time) is our mantra. Of course the next 24 hours……. I guess…..you know it goes without saying. STANDING VIGIL
Suffice it to say that I do not like making postings like this. Wayne is back at Huntsman, our home away from home, back in the ICU. Why? I hate this cursed word, Wayne has “sepsis”. From my earlier postings you know that this is not a good development. The vigil is on. He has been intubated and the work of stabilizing him has been going full force. It is amazing to see his will, I take much inspiration from him. Now if we can dig him out of this regrettable new twist.
Do remember that first day of junior high? Well, I can……and I am reliving it all over. Here were some of the things I remember most of us worried about: ♦ Will I have friends? We are leaving lots of people who have become friends and a kind of family. It will be hard to start all over, but with Wayne leading the way he should soon have them eating out of his hand. ♦ What will the teachers be like? In this case, what will the doctors be like? Humm….. ♦ How hard will the schoolwork be? The work to get stronger will absolutely be hard, but if Wayne keeps his nose to the grindstone it will be worth it. ♦ Will I find my way to my classes? Now I worry if I will be able to find my way around and to locate all the things we’ll need? I had it down pat at Huntsman, so much so that the staff would ask me where places and things were located. ♦ And then the was the question of “new romance? Wayne will not have to worry about that one. Wayne started flirting with his sweetheart when he was in the 7th grade and she will be by his side. Oh well, we all know junior high was just a preparation for the big stuff…..High school. Once they prepare him at Promise he will head off to the big school of “rehabilitation” and the chance of graduating to home. We are looking for history to repeat itself. After all, It didn’t take long for that “little husky boy,” Wayne to make the best of a new situation. By the time he was in the 9th grade he was class president. It won’t be long before he’ll be calling the shots.
Wayne’s condition, although stable is still “fragile.” Where Wayne will be discharged to is contingent on his medical needs. When a person has been ill for an extended period, bed ridden, basically de-conditioned big time, you must build their stamina up to do the work of rebuilding and rehabilitation. So while Wayne is getting better and stronger, he will need to go to an LTAC facility (more initials, shish). A LTAC is a long term acute care facility, these facilities can handle Wayne’s many medical needs; TPN, blood transfusions, high power ports, infection, protection precautions, skin care, et cetera, et cetera, et cetera (I couldn’t resist…don’t you just love the King and I ). And best of all, more time spent doing Physical therapy (PT) and Occupational therapy (OT). In Salt Lake county there are several long term care facilities, but there are only 3 LTAC facilities that could provide the level of care Wayne needs. So have I been checking references and shopping the real estate. I ruled out two, they would need to transport Wayne to a different facility every time Wayne needed to have blood products, did not have easy access to radiology and did not have rapid access to an ICU. Luckily for us, it was a good thing they were not the best fit, as one was located in Bountiful (north of SLC) and the other was located in South Jordan (southwest of SLC). Fortunately, the third facility seems best of all. Wayne will be going to a LTAC located in the city, inside a hospital, with on-site ICU and radiology. And I really liked the PT and OT department. The facility, called Promise, rents space from the LDSHospital and is located on 4th floor inside LDSHospital.
The plan for Wayne; go to the LTAC, work at getting stronger and build his stamina to make the next move. In order for Wayne to make that next move, he will need strength and stamina to be able to do 3 hours of physical therapy, without getting wiped out. Right now, he is still too weak to qualify for going directly to a Rehabilitation center. Once he can handle the work, he will move back to the University of Utah Hospital Inpatient Rehab for intense rehabilitation and the Promise of home. The promise of sunshine and HOME, now that IS promising !!!!!!
It looks like a move is in the works. A move, after all this time (today is day #97) should be a good thing. Of course this is all dependent on his remaining stable, it only takes a couple of days of stability and the hospital will need to move Wayne. As you know we have been staying in the Bone Marrow Transplant Unit, which is staffed and managed similar to an ICU. Now that Wayne is showing signs of stability he no longer needs that level of care, this is a good thing, a very good thing. Now we are waiting for clearance from the control tower to make a landing.
For a minute I thought Wayne was into text talk. Today, he said he “had a busy day with ECP, PT, OT, is no longer NPO, and went PP.” I replied……GR8!
Wayne was progressing along, things are looking good………HOLD ON THERE!!! TOO MUCH TOO FAST!!! Everything I have read and is said repeatedly by the staff is, s-l-o-w baby steps and they are not KIDDING!! Something upset the tummy. How do we know? First the “tummy aches” then the diarrhea comes and keeps coming. STOP!! We have to STOP this FAST!!! ECP changed back to twice a week, tube feeding stopped, in fact all feeding was stopped for 48 hours, and sadly, holding off additional weaning from the steroids. A change in one of those variables was one too many. The good news after only 6 days ……. things are back to normal. Well…. almost normal. Most important, the diarrhea has stopped. The bad news……He now has to eat all his calories, all 1,000 calories per day. This is actually hard to do when there are only about 10 things he can have, and the best option is jello, sugarless of course. He is determined, we are determined, to make 10 choices into 100. Let’s hope that it is enough to appease the GvHD. Then he can start back on eating food that is good. Oh, who I am kidding? It may not be good but at least it will be better. Better, getting better is what we are aiming for and then we’ll see who pulled a fast one.