“Don’t even try to pull a fast one on”…….GvHD revisted

Wayne was progressing along, things are looking good………HOLD ON THERE!!! TOO MUCH TOO FAST!!!  Everything I have read and is said repeatedly by the staff is,  s-l-o-w  baby steps and they are not KIDDING!!  Something upset the tummy. How do we know? First the “tummy aches” then the diarrhea comes and keeps coming.  STOP!! We have to STOP this FAST!!! ECP changed back to twice a week, tube feeding stopped, in fact all feeding was stopped for 48 hours, and sadly, holding off additional weaning from the steroids.  A change in one of those variables was one too many. The good news after only 6 days ……. things are back to normal.  Well…. almost normal. Most important, the diarrhea has stopped. The bad news……He now has to eat all his calories, all 1,000 calories per day.  This is actually hard to do when there are only about 10 things he can have, and the best option is jello, sugarless of course. He is determined, we are determined, to make 10 choices into 100.  Let’s hope that it is enough to appease the GvHD. Then he can start back on eating food that is good.  Oh, who I am kidding?  It may not be good but at least it will be better. Better, getting better is what we are aiming for and then we’ll see who pulled a fast one.

12 thoughts on ““Don’t even try to pull a fast one on”…….GvHD revisted

  1. baby steps are still steps! Good News! Feeding tubes are really not much fun and if they can stay in too long or your throat forgets what to do! Jell-o does have many flavors to chose from! Prayers still coming!

    • Thank goodness for J-E-L-L-O. It is so comforting to have your wisdom and experience in our corner. Thanks a bunch!

  2. Jello today, jelly beans by Easter!
    For what it’s worth, Duke University research proves that window views of landscapes, speed hospital patient recovery. Besides outdoor views, images of great art–especially Pollock paintings and images containing the “golden rectangle” proportions–can also reduce stress levels by as much as 60 percent–just by being in a person’s field of vision.

    • Wendy, you truly are a treasure. You were born to be a professional writer, but sometimes people might not realize you are also such a comedian. You always make me happy. Wishing you jelly beans aplenty, courtesy of Peter Rabbit.

  3. I know the hospital has its foods they want to see him eat. But Peeches look up information on Reliv Products. When Dad was having kidney failure and not getting enough nutrition I use the classic and energizer products. It gave him the ability to get his strength back. Just food for thought.

    • Food for thought, I am on it. Once I get to have some input we will be looking at all options. Thanks so much for the tasty tidbit.

  4. Keep going, better things are just around the corner. I’m looking forward to seeing you both on my next trip to SLC!!!!

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